Post by a_muppet on Sept 11, 2022 1:10:52 GMT -5
Updating on my thyroid woes... I haven't been feeling good. My dosage was increased, and the Endocrinologist suggested I get my thyroid removed because of my goiter size (it's 3 times the normal size ATM) and because of how long I've had this disease without ever going into remission. My symptoms abruptly worsened two days after the visit (breathless barely doing anything going on a week now), so it will probably be a while before I feel okay. I have a thyroid biopsy on Friday for a nodule that is almost the size of what a healthy thyroid should be in some dimensions... so hoping I don't have cancer, but might still need to remove my thyroid anyway because the goiter is bothering me, but I've had mine shrink some before, so I'm not sure. I'm depressed and scared. I want to curl up in a ball and cry so often.
I've been dealing with Graves' Disease for so long, and I'm just tired... I only remember a brief point in time where I felt okay a few years into being on medications... then when they tried to wean me off in hopes I'd go into remission, it skyrocketed again, and I was never able to reduce my meds as low as it was at that point. I wish I could feel that way again. I hear mixed stories from people who have removed their thyroid.... I'm afraid of making myself feel even worse than I already do, but a part of me also wonders if it would make me feel better than I do, even if I never feel great... It's not like I really know what normal feels like, I've had health issues most of my life. It's not an easy decision, but the decision will be made for me if the biopsy is positive or if the goiter grows more instead of shrink. I already found a surgeon with good reviews just in case. Trying to be mentally prepared for whatever happens.
I don't have many people I talk to about this type of thing, so thanks for reading...